Thursday, April 23, 2009

Nosy girl

One of Blaise's nurses calls her "nosy." I was a little offended at first. How dare she call my baby nosy? Then I realized what she was talking about. Blaise absolutely must know what's going on. When she's up on your shoulder, she's always looking around, sometimes craning her neck to see out the door (even when there's nothing there). When we take her for walks, she looks into every room we pass and just generally seems to be keeping an eye on everyone. It's probably a good thing she can't talk yet.

She is up to 10 cc/hour on her feeds and now gets 4 hours a day off the IV (but 2 of those are still on the g-tube). She holds her blood sugar steady as can be and even seems to be gaining weight well, which are both good signs. We had a great talk with her nutritionist yesterday about what we're expecting her to tolerate and what our goals are, as well as the logistics of weaning PN, fortifying breastmilk and supplementing with formula. Blaise is still very small for her corrected age (3rd percentile for weight and 10th for length), but at least she's on the percentile curves and they have a plan for catching her up using milk instead of PN when that's possible. It's nice to know the plan and the potential roadblocks going in so we can be prepared. Fortunately, those big toothless grins make the whole thing much more fun.

1 comment:

Justin N said...

Her parents are two scientists... of course she's a curious gal.