Wednesday, April 29, 2009

Doing well

It's been a while since we last posted, but we've been busy with both fun stuff and not-so-fun stuff. First of all, the weather has turned gorgeous (except that 93-degrees yesterday; not ready for that yet) and we've been able to take an untethered Blaise outside a couple of times. There will be pictures on the photo site soon. The trip is so much easier without Ike the IV pole, even if Ike is a big improvement over Fred, the last IV pole. Blaise's cuteness has been exclaimed over in at least 5 languages now and she gave a fantastic smile to a very old, very sick lady.

In spite of the better efforts of road crews in both Boston and Cambridge, we made the pilgrimage to Ikea this weekend to pick up some more furniture. We are now ready to assemble a crib, a changing table, a wardrobe, a small table and a kitchen cabinet. It's hard not to be a little superstitious about getting the room ready, but if we don't do it now, we'll have a ton of scrambling to do when they finally decide Blaise is coming home.

On the medical front, Blaise is now getting most of her nutrition from milk and still gaining weight! As of tomorrow, they're increasing her feeding increases to 3 mL every other day. She's at 16 mL/hour now and doing great with it. Our current feeding target is 28 mL/hour, so, barring setbacks, she will be at that volume a week from today. We're allowed to nurse once a day now, too.

Less fun stuff: Blaise's IV line was compromised over the weekend. We're not sure exactly what happened, but the day nurse came in first thing to find PN leaking out of the line and blood backing down. The two big risks with a line breach are blood loss and infection. Blaise didn't lose any blood and nothing potentially infectious actually got on the line, but we were still pretty anxious about it. They've sent a culture to make sure there's no infection and she seems okay so far, but we'd rather not repeat the experience.

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