As of today, Blaise has been home for a week and I think we've all adjusted to the new situation. Our home nurse has checked in a couple of times and today we had our first visit to the pediatrician. You know, the regular one, whose office is 10 minutes from our house; he'd heard a lot about Blaise but never met her. The verdict is that we're all doing great. Photos of how great are here.
We're trying to get into the groove of "co-parenting." Blaise is not a candidate for group daycare, too high a risk of GI bugs and an unsurprising dearth of centers that are willing to take a kid with a g-tube. We can't afford a nanny, so Ben and I are trading off. I go to work in the morning and work from home in the afternoon and he works from home in the morning and then heads to lab in the afternoon. We had planned to take this first week home off and just find the home routine, but schedules at work were not so accomodating. It's a bit tiring, but it's also fun to both spend time with Blaise every day.
It's nice to feel normal(ish). After the appointment this afternoon, we went to the Au Bon Pain on the ground floor of our doctor's building. I gave Blaise her bottle while Ben ate a sandwich. It sounds really mundane, but it wasn't something we'd ever done before. Mundane is good. It's a bit of culture shock to go from the hospital, where everyone has tubes, to the real world, where most people have never seen a healthy baby with a tube. The little backpack for the enteral pump makes Blaise rather portable and I'm sure most people don't notice the line running from under her onesie to the basket under the stroller. Incidentally, she loves walks in the stroller, looking around and taking it all in. The world is such a big place!