We're a bit ahead of the 31st, but today is Blaise's first chance to wear her costume (for the Halloween parade at daycare). The video below is just long enough for her to tell you what she is. Enjoy!
Hello to Blaise and her family. We've never met, my name is Britany and I had my daughter July 23, 2010 at 28wks. She got NEC when she was 10 days old. She had about 14inches of dead bowel removed, has had 4 surgeries to date, the last one at the University of Michigan about a week ago for reanastomosis. We're hoping that being put back together will give her the ability to get the nutrition her body needs. I found your blog while searching for information on short gut babies. Your family is so inspiring. I sometimes find it hard to keep optimistic, but this blog really has helped. I wish you all the very best, and thank you so much for sharing your bravery. Really, thank you.
Hello Britany, We, too, drew a lot of inspiration from other families' blogs during Blaise's early months. It was good to know that we weren't alone and that there are kids with short gut living happy, wonderful lives. If you'd like to communicate more, my gmail address is econwell. All the best to you and your family.
Blaise was born January 1, 2009, at Brigham and Women's Hospital in Boston. Because of a giant cyst, her small intestine twisted on itself in utero, cutting off its blood supply and causing most of it to die. Blaise has 45 cm of small bowel, including her terminal ileum, an ileo-cecal valve and a complete large intestine. Because she lost so much of her small intestine, she has a diagnosis of short bowel syndrome (a.k.a., short gut). She came off TPN/Omegaven after 5 months and stopped tube feeds at 15 months. She spent her first 148 days as an inpatient at Children's Hospital Boston and was welcomed home May 28, 2009.
More importantly, Blaise is smart, tough and fun. We brag about her shamelessly, but we have a lot to brag about.
3 comments:
That is the cutest thing I've ever seen.
Hello to Blaise and her family. We've never met, my name is Britany and I had my daughter July 23, 2010 at 28wks. She got NEC when she was 10 days old. She had about 14inches of dead bowel removed, has had 4 surgeries to date, the last one at the University of Michigan about a week ago for reanastomosis. We're hoping that being put back together will give her the ability to get the nutrition her body needs. I found your blog while searching for information on short gut babies. Your family is so inspiring. I sometimes find it hard to keep optimistic, but this blog really has helped. I wish you all the very best, and thank you so much for sharing your bravery. Really, thank you.
Hello Britany,
We, too, drew a lot of inspiration from other families' blogs during Blaise's early months. It was good to know that we weren't alone and that there are kids with short gut living happy, wonderful lives. If you'd like to communicate more, my gmail address is econwell.
All the best to you and your family.
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