Blaise modelling her corduroy "ova-aws." She *loves* them.Barring some actual concern, Thursday marked our final visit to the short gut clinic at CHB. Sort of an odd feeling. I'm not going to say we'll miss clinic, but checking in with people who really know Blaise and really know short gut is always nice. (I think the new fellow didn't quite believe Blaise's medical history. Sometimes, I don't either.) At weight check, we discovered that, although she is longer and has gained a little weight, she's fallen behind the weight curve again. Frustrating, especially now that we don't have the tube to fall back on. That somewhat disheartening news was followed by a visit to say hello/goodbye to our favorite nurses and the world's greatest child life person (We love LaKeisha!) on 10East, which perked us up. Unfortunately, that was followed by a very long blood draw, made all the worse by Blaise's ability to scream for Mama the whole time, and then a drive home that was 3 times the usual duration. So, yeah, not really going to miss clinic, but still strange to think we likely won't go again. What do you say to the GI doc and nutritionist who have been so helpful for so long? "Thank you" seems inadequate.
Blaise is herself: cute, quick, crazy, smart and ornery. Not doing so well with the eating, especially of calorie dense food. She only really digs in for homemade mac-n-cheese and "tikka-sala rice" (she asks for tikka masala for breakfast). Otherwise, it's cheerios and grapes. We think it's just typical toddler disinterest in sitting still for any but the most awesome foods; we're trying to stay patient. Trying is the operative word.
Blaise is herself: cute, quick, crazy, smart and ornery. Not doing so well with the eating, especially of calorie dense food. She only really digs in for homemade mac-n-cheese and "tikka-sala rice" (she asks for tikka masala for breakfast). Otherwise, it's cheerios and grapes. We think it's just typical toddler disinterest in sitting still for any but the most awesome foods; we're trying to stay patient. Trying is the operative word.
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Mira's pediatrician was also a child oncologist, and he said he was a pediatrician because he liked getting to see at least some healthy children. I would guess that short gut specialists feel the same way. Sending them a picture every now and then of Blaise eating crazy foods that they never thought she would be able to eat would possibly be the best thank you that you could give them. Somebody has to remind them that some of their patients do eventually get to live a mostly normal life.
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