We live walking distance from at least 6 playgrounds. It's almost 70 degrees and sunny today. Those two facts make for one very happy Blaise (who has finally decided that bending her knees to step is worthwhile).
We hear our friends and family in Kansas City are getting snow again today. So, yes, we are gloating.
Blaise was born January 1, 2009, at Brigham and Women's Hospital in Boston. Because of a giant cyst, her small intestine twisted on itself in utero, cutting off its blood supply and causing most of it to die. Blaise has 45 cm of small bowel, including her terminal ileum, an ileo-cecal valve and a complete large intestine. Because she lost so much of her small intestine, she has a diagnosis of short bowel syndrome (a.k.a., short gut). She came off TPN/Omegaven after 5 months and stopped tube feeds at 15 months. She spent her first 148 days as an inpatient at Children's Hospital Boston and was welcomed home May 28, 2009.
More importantly, Blaise is smart, tough and fun. We brag about her shamelessly, but we have a lot to brag about.
1 comment:
Quite the mover and shaker these days!!
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