They increased Blaise's enteral feeding to 5 mL an hour on Thursday, which freaked us out a little bit because previous increases had been .5 mL, not 1 mL. It sounds like a little difference, but it works out to nearly an ounce a day. No big surprise, her stool output went way up, but not so high that the doctors want to back off. I was sure we were hitting the wall, but apparently Blaise has a different idea of where the wall is than I do. The problem is that as her output goes up, so do the chances of her bag leaking and needing to be replaced. Bag replacements are a big pain. Blaise yells all the way through them and the more she yells, the more she stools and the more she stools, the more likely it is that the bag will leak. We did 4 bag replacements in 6 hours yesterday. I actually had a dream about replacing an ostomy bag last night. Just in case anyone was wondering whether I was in denial, it seems like even my subconscious has reached acceptance.
Okay, I'm done talking about weird baby poop. We also heard yesterday that Blaise's surgeon and her GI specialist had discussed the possibility of sending her home before her surgery in April. They decided against it only because she would be the smallest baby they had ever sent home on PN. (There are some logistical roadblocks, too.) We're not really disappointed because this wasn't a possibility we had ever entertained, but it's still nice to know that she's so strong and healthy that even her doctors forget how tiny she is.
3 comments:
That blog was crappy at first but it ended well. Blaise is adorable. Enjoy your big snowstorm tomorrow.
With that windup I was kinda expecting to hear more about baby poo! Glad to hear Blaise continues to wow and charm all who know her, and looking forward to seeing her and you soon!
If you want to hear more about baby poo, we have plenty to say, but Blaise will be old enough to read someday and will get really mad if we publish all the details on the internet.
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